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About me / About business or organisation:: EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of 745 rare disease patient organisations from 65 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe.

Career history / Company history:: EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 700 rare disease patient organisations from more than 60 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe.

By connecting patients, families and patient groups, as well as by bringing together all stakeholders and mobilising the rare disease community, EURORDIS strengthens the patient voice and shapes research, policies and patient services.

EURORDIS supports the creation and development of rare disease national alliances and disease-specific European federations and networks.

EURORDIS is supported by its members and by the AFM - Téléthon, the European Commission, corporate foundations and the health industry. EURORDIS was founded in 1997.

At 17:19 on September 8, 2017, KATE KWAME said…: My name is Mrs Kate,I was impressed to contact you today because i have something very vital to disclose to you.
Its important that you get back to me because it is about you,In addition, please kindly contact me direct with my email( katekwame@yahoo.com )to enable me to send the details to you,for you to know whom i am,am Waiting to hear from you,Remember do not reply me in the
http://ethicalfashionforum.ning.com use my private email address
Thanks

Kate Kwame.

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